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We know that incurable illnesses can be difficult for everyone involved. Our Family Support Team is here to support you through all the different phases of a patient’s journey.

 

In this section you will find information for family members, friends and carers, including advice on how to explain incurable illness to children, information on how to access support and counselling, and practical information on coping with bereavement. While much of this information would be relevant at any time, you will also find some sections below which have specific information on the changes which have happened due to COVID-19. We hope you will find them helpful.

If you would like further information or support for yourself or your family, contact 0131 551 7751 and we will direct you to the most appropriate services for your needs.


When someone has an incurable illness

When someone has an incurable illness it can be challenging not only for the patient, but for their family and friends too. The illness can bring about changes in your day-to-day life, finances and relationships which can feel difficult to cope with. We hope the information in this section will help.

Support services for carers

How to explain incurable illness to children

CORONAVIRUS (COVID-19) INFORMATION

The information in this section is correct at the time of publishing (23 April 2020) but the situation is very fast-changing. Please contact us for up to date information on visiting restrictions.

Coping with COVID-19

Ideas to help your mental health during physical distancing

Hospice visiting restrictions during COVID-19

Explaining hospice visiting restrictions to children under 12


After a death

When someone dies it can cause painful feelings of loss. There are also a number of practical tasks which will need to be completed. The information in this section will help you understand the steps that will need to be taken after someone dies and will let you know how to access bereavement support.

When someone has died

Practical advice and support for adult relatives and friends

When someone dies

Talking with children about death

CORONAVIRUS (COVID-19) INFORMATION

The information in this section is correct at the time of publishing (23 April 2020) but the situation is very fast-changing. For the most up-to-date information please check the information published by the National Association of Funeral Directors and Cruse Bereavement Care or contact us on 0131 551 7751.

Coronavirus – bereavement, funerals and grief


Sources of support

If you feel you could benefit from some support for yourself, and/or would like to access support for your child or children, contact 0131 551 7751 and our Access Team will direct you to the right services to meet your needs just now. We offer a range of services for the family and friends of patients, ranging from information and support for those currently caring for someone with an incurable illness, through to bereavement support and counselling for yourself or your children.

Specific Coronavirus (COVID-19) Support Resources

Additional COVID-19 Information and Support Resources

Breathing Space

Information and support line for anyone feeling stressed or overwhelmed

www.breathingspace.scot

0800 83 85 87

Samaritans

Telephone helpline

www.samaritans.org

116 123

Cruse Bereavement Care Scotland

Bereavement Support Helpline

www.crusescotland.org.uk

0845 600 2227

Edinburgh Crisis Centre

For anyone experiencing a mental health crisis in Edinburgh

www.edinburghcrisiscentre.org.uk

0808 801 0414

VOCAL

Information and support for those caring for someone who is ill or frail

www.vocal.org.uk

0131 622 6666

Good Life, Good Death, Good Grief

Support for communities and individuals during hard times that can come with bereavement.

www.goodlifedeathgrief.org.uk

Anxiety UK

Information and support for people experiencing anxiety

www.anxietyuk.org.uk

03444 775 774

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